Thursday, June 25, 2015

Where is time going?? 19 weeks!

I'm letting the girls watch TV while I make this blog entry...otherwise it'll never get done (We never let them watch, and if we see them fixate on the flashing screen, we shut the TV off).  So, oops... I'm using the TV as a 'babysitter' already... they have to watch KARE 11 Sunrise News, so they will fall asleep soon!

Last Tuesday, the girls had their four-month check up and.... they are on the charts!!  As preemies, they are considered 'failure to thrive' on the charts, because their little bodies are based off of their birth date(9 weeks early) not their due date. So, when they bring up their growth chart they are much smaller than the other babies born February 12th.  SO... as of June 16th, at 17 weeks:
Danika 
11 lbs 4 oz (6%)
 22 inches (.97%)

Johnalyn
10 lbs 15 oz (4%)
22 inches tall (2%)

This is amazing as 9 week old preemies aren't expected to hit the charts until a year, or so, after birth.  It typically takes that long to catch up with their peers.  They both had rounds of shots and they are champs.  

During the exam, they were both diagnosed with torticollis.  Torticollis is "a condition in which the head becomes persistently turned to one side, often associated with painful muscle spasms" (thanks Wiki).  Because of this, this is causing the right side of their head to be flat, because that's the side they favor.  We have been working on neck exercises and rolling a blanket under the right side of their back to force them to sleep on their left cheek, LOTS of tummy time, and now we have started going to a chiropractor.  We are doing everything possible to try to avoid a helmet.  If they do need helmets, that's how it'll have to be, but who wants their kid to sport one of those sweaty things??  Johnalyn's torticollis is more severe than Danika's.  The chiropractor rated Johnalyn at 4.5/5 (5 being the worst) at presentation, and Danika at 3.  After three adjustments, he is now rating Johnalyn at a 3 and Danika 2.  He said that when he felt Johnalyn's right neck, when he pushed on it, it was so tight it was pulsating.  Poor baby girl!!  So, we are hoping with everyone's efforts we can avoid the helmet. 

We are also still dealing with their lack of stooling.  I still give them a suppository once every five days (girls, if you're reading this in 18 years, I'm sorry!)... and they refuse to stool on their own.  We have now started 1 tsp of Karo syrup in their nighttime bottles... so we're hoping for results... the doctor doesn't seem to concerned about it at this point. Because of them being premature, all of their insides weren't fully matured, including their anal sphincter (again... sorry girls), so their sphincter isn't developed enough to coordinate what needs to be coordinated to make a stool.  Ok... done with poop now.

They are STILL sleeping through the night!  We put them to bed around 9:30, and one of them is always up by 5:15.  It's awesome!  They are such happy babies... I can't wrap my head around how incredibly blessed we are!!  

We went through some more life changing moments this week... I am now starting to work more and the girls had their first day of daycare yesterday.  I know how moms say they cry all morning the first day of daycare, but I thought because I've been to work and the grandmas have been taking care of the girls, and the fact that we are easing into this with daycare only Wednesdays and Fridays, I honestly didn't think it would be that 'heartbreaking'.  Ha... who was I fooling.  I got there and the gal in the infant room was a gal I hadn't met, very sweet, but I didn't know her.. and I handed my children to her.... and I started tearing up.  I gained composure quickly because I don't want to look like 'one of those moms'... Let's face it... I am 'one of those moms'... but I try to hide it.  When I got back to the van, I cried all the way to work. but coffee makes everything better, so I ordered a large.  They did very well, but I was glad the day was over.  We will do two days of daycare until they can start full time in August.  

They are both complete jabber boxes.  They will jabber to us, to eachother, to their boppies... they'll 'talk' to anything and anyone.  Danika started belly laughing on Tuesday.  I was changing her diaper, and she thought it was hilarious!  They are exceeding in communication, that's for sure!

Here are a couple videos.. and of course... pictures!

Daddy and Dani

Saturday Morning Talks



Tuesday, June 9, 2015

16 weeks!

The girls are growing so fast and developing more skills everyday.  Donny and I just sit and watch them in awe most evenings.  

Last week, both girls have started to look at us and give us a big gummy smile.  It just so happened that it started in the middle of the night when we are exhausted and the last thing we want to be doing is changing diapers.  I mentioned before that I was getting concerned about their lack of eye contact with us...  I really need to keep reminding myself that they will develop on their own timetable because they love to study our faces now! 

I mentioned in my 14 weeks post that the girls did a 6 hour sleep stint in the middle of the night... well, they're now going on four days straight of sleeping 8 hours!  Does that mean mom and dad are getting eight hours too?  HA!  We are getting more sleep, so I'm definitely not complaining. I just need to stop going into their room randomly throughout the night to check on them.  Now that they're sleeping more at night, I miss those nighttime snuggles.  Johnalyn is always the first one waking up, around 5:00-5:30.  They don't scream when they wake up anymore either... they just kind of mumble and moan for a bit.  Danika is definitely our sleepy one... she'll wake up after Johnalyn and always with a BIG smile.  She wakes up SO happy...she gets it from her dad... NOT her mom!  

I get a lot of weird looks when I say we have to stay on a schedule.  As they're getting older and our life dynamics are changing (me starting work), it's becoming more crucial we stay on a schedule.  We are SO fortunate that the girls have grandma's that come to our rescue!  Grandma Cindy is coming twice a week, so I can get my feet wet at work again and establish a new routine for our family.  We are up between 5:00-5:30.  Donny takes one baby, I take the other.  We diaper, change clothes, and feed.  Donny has to be getting ready for work by 6:00, and out the door by 6:30.  That's when I pump.  When he's out the door, I get ready for work clean bottles, and mix bottles for the day.  Grandma Cindy comes by 7:15-7:30, and I'm out the door!  When I get home, I pick up the feeding schedule, figure out supper, feed the girls, eat, clean, and then we make sure the girls are awake and playing around 7:30-8:00 to tire them out before bed, we give them a filler bottle at 9:00, and they're down for the night.  I love routine.  I love this routine.

Last week, the girls and I ventured out to their future daycare, Kids Corner in St. Peter, to meet their teachers, visit the kids they'll be with, and get a full tour.  This place is going to be great for them, and us.  I was really battling with having our kids go to daycare.  Both Donny and I grew up with our moms at home, taking care of our every need day in and day out.  Donny and I considered all of our options and really looked into all aspects of me staying home versus going back to work.  We decided that it would be best for me to stay working... not just because of the money, but also because I really do enjoy my job, and my work family... and I'm also nearing my 10 year mark at Mayo Clinic, and I really do have good benefits.  SO, daycare it was.  Kids Corner was the only place we considered as a daycare because it is center and it's curriculum based.  Also, being that it's a center, it's always open.  We feel that they will not only be a daycare all day, they'll also be at school because they will be learning ALL the time and developing their social skills.  We don't have a huge social circle with where we live, so we wanted them to get to know other kids their age, other than just each other.  

Anyway!  We are soaking in every little tiny developmental milestone with the girls.  They've both found their fists to suck on.  They love to giggle with their daddy.  Johnalyn is starting to scoot, and Danika is right on her heels.  They are finding their voices and babbling and cooing.  They mimic our facial expressions. These are all new things from the past two weeks.  I LOVE it, and we are cherishing every moment and every stage

Thursday, June 4, 2015

I'm a Mother of Four

I've been contemplating about this blog for some time and I've been going back and forth whether to bring up a sad topic while things are so joyous for us now... but this is a part of who we are and what our family has become.

I don't know if many people notice, but I don't call our girls 'twins'.  I call them 'our girls'.  We lost 'our twins' June 5, 2013.  For some reason, I have a hard time calling our girls, 'twins' because I feel that the twins deserve their own title: The Grunloh Twins.  It's just a weird quirk I suppose.  I don't talk about it to too many people because it's still hard for me to find the right words when it comes to the whole situation, and I know many won't/don't understand, so why put them (and me) in an awkward situation.  But on the flip side, I know there are a lot of inquisitive minds around our loss.  Here it goes:

Two years ago today, our world came to a crashing halt when I was 19 weeks and 6 days pregnant with our twins.  My water spontaneously broke.

I'll start from the beginning...

To our shock, we got pregnant as soon as we decided to start a family.  We found out we were pregnant in February 2013, and found out we were having twins in March.  I was having a flawless pregnancy.   We told anyone and everyone the news as soon as we reached that three month mark.  We rolled out a quirky Facebook announcement, we told our parents by dying Easter eggs blue and pink, we pulled out the ultrasound picture that clearly showed two babies to make them completely speechless, I bought a whole new maternity wardrobe, we got cribs, the changing table, swings, bouncy seats.... when we reached three months, my naive mind told me that nothing could go wrong now!

My water broke on June 4, 2013.  I was 19 weeks 6 days pregnant. I had no symptoms leading up to the moment my water broke.  The ultrasound showed that I had no cervix and I was dilated to 2, and no fluid around 'baby A'.  We were given two choices:  Proceed with labor and deliver both babies or hold out as long as we can, hoping to delay natural labor as long as we could in order to get to a viable state for the babies (24-25 weeks).  Both babies were fine at the time... active and good heart beats, and absolutely beautiful on the ultrasound.  I kept looking at that screen and seeing our babies move around, content as could be.  Our tech asked us if we wanted to know the sexes... 'baby b' was a boy...and she couldn't find the sex of 'baby A'.

Donny and I did a lot of soul searching that evening and into the night.  It was, and still is, the hardest decision anyone could ever make... the fate of your children. We were given all the stats of survival with our situation, all the risks, and very little benefits.  All of the cards were leading to proceeding with labor.... I couldn't wrap my head around it.  What mother could utter the words "Lets start the pitocin" when you're 20 weeks pregnant with two babies still with heart beats.  It wasn't fair.  I was SO angry.  Mostly angry with myself.  I felt like I failed my babies by not knowing my body enough to think something was wrong.  I kept running the whole day through my head and started thinking of red flags throughout the day... chalking it up to my growing belly.

Pastor Fred and his wife Stacy came the next morning.  We cried.  We prayed.  We begged to God for peace and understanding.  I thought this would cease my anger.  It didn't.  I was so angry. I clenched onto my belly, not willing to let go, and not willing to come to terms with losing these sweet angels.  When Pastor Fred and Stacy left, Dr. Larson came in and checked me, and he deemed that 'baby A' was no longer with us, most likely due to lack of fluid and lack of developed lungs.  That was the answer to our prayers.  Not the answer we wanted, but it was our answer on how to proceed.  I didn't have to make the decision now.  We had to proceed with labor.  I asked a million questions.  I was holding on to any possible hope for our little boy... and there was none.

We started the Pitocin, and a grueling 10 hours later, we gave birth to our baby girl, and 15 minutes after, we had our baby boy.  We chose not to hold them after I gave birth.  I knew if I would have taken them I would have completely lost it and would have never let go.  Our baby boy had 10 minutes of life.  The nurses took him, gave him a bath, wrapped him in a blanket, and cuddled him.  At the time, I didn't know this.  I was told of his life after he was gone, as our request was to not hold right after birth.  I was completely heartbroken, and again, so angry.  Angry with myself.

Soon after I delivered, a gal came in and asked us:  "What funeral home would you like us to contact?"  I felt like my heart kept getting stabbed.  We had no idea we were having to deal with death certificates, funeral home decisions, cemetery decisions, burial decisions, legal paperwork.... Yesterday, we were told this would be considered as a 'late-term miscarriage' and that the hospital takes care of everything.  That was yesterday.  Today, June 5, 2013, I was 20 weeks pregnant.  At 20 weeks, our babies were considered infant deaths.  Not a miscarriage.  Our baby girl was stillborn, and our baby boy left us shortly after birth, deemed as an infant death.  The 'category' they were in didn't change our heart break... but it changed a lot of stressful logistics.  We wanted to bury them in the plot with other children who passed away in their mother's womb or shortly after birth.  We couldn't, because they had to be at least 22 weeks gestation.  Anther stab to the heart.  We decided on cremation.  

The next morning, I decided I wanted to meet them.  They blocked the waiting room for me and they brought the babies in.  They were beautiful.  Dressed in white gowns with little white bonnets.  They had flawless skin, with porcelain faces.  I sat and cried... just me, my babies, and my amazing, incredible nurse (who was my nurse when I was in the hospital with the girls and was just as incredible then).

We left the hospital that day empty, tore apart, broken.  I was in a blur and at my all-time low.  My instinct told me to just block it all out and let the people around me grieve.  It's easier for me to comfort than to be comforted.  That's my coping mechanism.  I dealt with anger for quite some time.  Cards, messages, flowers, phone calls, and visits were constant.  Every time we got one more card, I got more angry.  I was the source of people's sadness.  I thought if I assured the people around me that I was just fine, they should be too, and they can go back to life as they knew it, and I can have time to figure out my own grieving.

We took some of the twins' ashes and had them spun into a glass heart necklaces.  The remaining ashes we put in Lake Superior in Duluth. The most peaceful and special place to me for many reasons.  We didn't try to get pregnant until we were at peace with the loss of our twins.  My anger ceased over time, and things slowly came to a new normal.  We had two more miscarriages before getting pregnant with our girls: our gifts... our miracles... our rainbows after the storm (and to answer other inquisitive minds, we had no fertility treatments at any point in time).

The twins, and their story, taught me how to appreciate the smallest things in life.  Life is short, life is fragile. I get frustrated at people who complain about the pettiest things, and I get frustrated with myself when I also fall back into that mind set. I get angry when I hear thoughtless comments when it comes to pregnancy, pregnancy loss, bringing a precious life into this world, and the countless news stories of child abuse and neglect.  I have a hard time talking about our story to other women with pregnancy loss because my heart breaks for them.  I don't  have magic words.  It's something every parent of infant loss has to muddle through on their own.  It doesn't make things better when people tell you similar stories to help relate to you, or the small comments of confidence like "This too shall pass" or "there's a reason this happened".  Nothing helps when you're in the moment of grieving and trying to process the loss of a child/children.

I'm still trying to find the positive of losing our twins.  Yes, we wouldn't have our girls if it weren't for the loss.... Is that a positive?  I don't know... but it's an incredible, unfathomable blessing. God really wanted us to have twins.

When I left the hospital, my nurse gave me a bag.  I know what's in it:  Molds of their feet, hand prints, foot prints, their hospital birth certificates, the outfits they were dressed in, two white quilts, pictures of them, and coping/grieving pamphlets.  I haven't touched the bag.  Maybe some day, but I'm still not ready... I don't know if I'll ever be, but I do know that these babies are still very much a part of our family and still very much alive in our hearts and their sister's hearts.



Angel of Hope Memorial at Leif Erickson Park in Duluth

  P.S.  To everyone who sent us cards, money, gifts, food, flowers, etc... Thank you, Thank you, Thank you!  I had every intention of sending thank you cards to all of you... But when I sat down to do it, I couldn't.  I didn't know what to say. I was so sad that I was making other people sad.  I can't even explain the emotions when we received over 100 cards and countless gifts.  It got to the point where it became so overwhelming, I had to put it away... and that, too, has not been touched for almost two years, but I will never forget the overwhelming sense of love and support surrounding us during the darkest time in our lives.